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National Network of Consultants to Grantmakers;
As a growing number of foundations consider disability inclusion in the context of their internal policies and practices as well as their external-facing work, the need to strengthen the infrastructure and ecosystem that supports those efforts is becoming increasingly important. This working paper, commissioned by the National Network of Consultants to Grantmakers (NNCG), provides a high-level overview of the current philanthropic landscape—the ways in which foundations are incorporating disability inclusion into their work as well as the ways in which consultants have been supporting their efforts.
Centre for Human Rights, University of Pretoria;
The report sets out the outcomes of a rapid human rights-based global monitoring initiative – the COVID-19 Disability Rights Monitor (COVID-DRM) – sponsored by a consortium of seven leading disability rights organisations, which took place between 20 April and 8 August this year. Through centring the testimonies of 2,152 respondents from 134 countries, predominantly from persons with disabilities themselves, the report draws the worrying conclusion that states have overwhelmingly failed to take sufficient measures to protect the rights of persons with disabilities in their responses to the pandemic.Perhaps most troubling of all, it highlights that some states have actively pursued policies which result in wide-scale violations of the rights to life and health of persons with disabilities, as well as impacting on a wide range of other rights including the rights to liberty; freedom from torture, ill-treatment, exploitation, violence and abuse; the rights to independent living and inclusion in the community, and to inclusive education, among others. Such practices give rise to specific instances of discrimination on the basis of disability, and must be directly challenged and prevented.Notably, these issues are not confined to developing countries alone. While the pandemic has strained public authorities in virtually every country, one significant finding of this study is that persons with disabilities report being left behind in countries regardless of their level of development, across both wealthy and developing states. In many cases, the disproportionate impact of the virus and state responses could have been predictable – and steps should have been taken to mitigate some of the worst effects. In some cases, the failure to act has had fatal consequences. In other cases, states have taken actions which cause further harm to persons with disabilities such as through denying access to basic and emergency health care, imposing dangerous lockdowns on overcrowded institutions, and through heavy-handed enforcement of public security measures.
The Ian Potter Foundation;
This document is intended for future applicants and grantees in the Disability program area. It contains the summarised learnings of all Disability grantees over the past seven years.The information documented here has been taken from the final reports of Disability grantees, which were submitted to The Ian Potter Foundation following the completion of their projects. As such, the views expressed here do not necessarily represent the views of The Ian Potter Foundation.Please note that the guidelines for the Disability program area have recently been narrowed, and as such the learnings in this document may be broader than our current objectives.
National Hospice and Palliative Care Organization;
Many people with disabilities are living longer now with more modern and technological advances in health care, and need different kinds of care and support, particularly at the end of life. In addition, trends show that parents and caregivers of those with disabilities are not outliving their children as they historically did in most cases. With the changing trends, hospice providers need to be ready for to care for people with disabilities and their families as well as a child or adult with a disability whose parent is under their care.
IIE Center for Academic Mobility Research & Impact;
More than one billion people—15 percent of the world's population—live with some form of disability. This large number belies the fact that people with disabilities are often among the most marginalized, neglected, and invisible members of society, particularly in developing countries, which are home to 80 percent of the world's disabled population. As part of its aim to provide higher education opportunities to disadvantaged groups from around the developing world, the Ford Foundation International Fellowships Program (IFP) provided graduate fellowships to nearly 175 emerging social justice leaders who have disabilities and/or work in areas of disability rights, advocacy, and service provision. Since IFP's conclusion in 2013—and with support from the Ford Foundation—the Institute of International Education (IIE) has led a 10-year IFP Alumni Tracking Study that seeks to document the personal trajectories of these and other IFP alumni, as well as the impacts they are having on their home communities morebroadly.We asked IFP alumni who work in the disability field a simple question: What challenges do individuals with disabilities face in your country and how are you working to find solutions? Alumni from around the world engaged with disability issues in various capacities responded, describing the myriad difficulties faced by people with disabilities in their home countries, as well as the efforts being made to improve their lives. This brief shares examples and common themes that emerged from the stories of alumni disability advocates in five IFP countries: Chile, India, Kenya, Russia, and Uganda.Their responses indicate that regardless of their location or impairment, people with disabilities face similar challenges at the individual, community, and national levels. Beyond these common challenges, IFP alumni are also united by the fact that their fellowship experience gave them new tools and perspectives to promote disability rights, improve services, and advance inclusive policies in the developing world.
This User Guide contains information on the National Health Interview Survey -- Disability supplement (NHIS-D) that was fielded in 1994 and 1995.The User Guides provide disability data users with:An easily accessible guide to the disability information available in the major nationally representative surveys;A set of estimates on persons with disabilities from the dataset, including estimates on the size of the population, the prevalence rate, the employment rate and measures of economic well-being;A description of the unique features of the survey; andA set of estimates that highlight the unique features of the survey.
Sillerman Center for the Advancement of Philanthropy;
Social Justice Funders Spotlights present stories of innovative, effective social justice philanthropy in action. Each spotlight focuses upon a grantmaker and a grantee.Disability Rights FundThis spotlight is part of Sillerman's Participatory Grantmaking project.
The Ian Potter Foundation;
This document is intended for future applicants and grantees in the Disability program area. It contains the summarised learnings of all Disability grantees over the past seven years.The information documented here has been taken from the final reports of Disability grantees, which were submitted to The Ian Potter Foundation following the completion of their projects. As such, the views expressed here do not necessarily represent the views of The Ian Potter Foundation.Please note that the guidelines for the Disability program area have recently been narrowed, and as such the learnings in this document may be broader than our current objectives. The current Disability objectives are as follows:Encourage innovative approaches to increasing employment opportunities for individuals with disability.
Lurie Institute for Disability Policy;
This report presents a national overview of the barriers to civic engagement that disabled people experience. Drawing on our findings from surveys, a Twitter chat, and interviews, we offer recommendations for the philanthropic sector and for civic engagement organizations aspiring to create a more inclusive and responsive democracy to build civic power among people with disabilities. Civic power in this report is conceptualized as opportunities for people with disabilities to amplify, mobilize, and elevate their voices and infuence within democracy.This report centers the expertise, insights and lived experiences of people with disabilities, including leaders from various disability communities. Our findings reaffirm that no disability rights issue exists outside the sphere of civic engagement and no meaningful civic engagement strategy can emerge without attention to disability rights. Supported by the Ford Foundation's Civic Engagement and Government (CEG) program, this report is a collaboration between the Lurie Institute for Disability Policy and the Sillerman Center for the Advancement of Philanthropy, both based at Brandeis University's Heller School for Social Policy. The disability rights mantra "nothing about us, without us" informs the questions, methods and content in this report. We hope the findings and recommendations will inspire new thinking and action within philanthropy and civic engagement spaces, and spark courageous conversations and inform practices within the vital organizations working to strengthen democracy in the United States.
European Foundation Centre (EFC);
This publication, focused on what foundations should be doing in order to implement affirmative policies that actively foster the rights of persons with disabilities, underlines the level of EFC (European Foundation Centre) commitment to the necessary, even overdue, efforts towards the mainstreaming of disabilities within foundations' work. There is a spectrum of responses that foundations can take, from being more aware and sensitive to the needs of persons with disabilities and how these might be factored into work supported by a foundation, to having an explicit focus on disability. By highlighting examples and best practice from different foundations in Europe, this book also aims to make the point that partnering and peer learning are excellent ways to spark new ideas.
European Foundation Centre (EFC);
In the context of the 10th anniversary of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD), the European Foundation Centre undertook a survey of its members and other institutional philanthropy actors who are funding, supporting, advocating, and partnering to advance the situation of people with disabilities in Europe and beyond, including those with disabilities related to ageing.This publication summarises the survey results which provide an up-to-date picture of EFC members and other funders active in the field of disability, whether it is part of their core mission or just one of their fields of action, and an insight to better understand their practices. The survey results are based on input from 34 philanthropic organisations. Data supplied refers to the year 2015 unless otherwise specified.The report comprises two parts:Part 1: A profile of this sample of disability funders, addressing in particular who they are, their main area(s) of focus, who they support, how they work, and if they cooperate and why.Part 2: A snapshot of 24 initiatives and projects supported by these organisations to illustrate some of their disability-related work, outlining their approach and achievements, as well as some challenges and learnings.This publication was produced with the support of the EFC's Disability Thematic Network (DTN). Network members include: King Baudouin Foundation, Essl Foundation, Fundacion Once, Fondazione Bianca del Monte di Lucca, Genio, Karuna Foundation, Light for the world, and Sabanci Vakfi.
This report addresses entrepreneurship activity among Persons with Disability in Uganda and their potential to contribute to economic development.